Dysautonomia Awareness Month

posted in: ANS, Invisible Illnesses | 1

What is Dysautonomia?

Dysautonomia is an umbrella term used to describe several different medical conditions that cause a malfunction of the Autonomic Nervous System. The Autonomic Nervous System controls the “automatic” functions of the body that we do not consciously think about, such as heart rate, blood pressure, digestion, dilation and constriction of the pupils of the eye, kidney function, and temperature control. People living with various forms of dysautonomia have trouble regulating these systems, which can result in lightheadedness, fainting, unstable blood pressure, abnormal heart rates, malnutrition, and in severe cases, death.

Dysautonomia Awareness Month 

October is Dysautonomia Awareness Month. Over 70 million people around the world live with a form of dysautonomia, yet many people have never heard of it.   I will create awareness  about dysautonomia by sharing from  my experience, and relevant information I believe will shed more light on dysautonomia. I had an appointment with a cardiologist last month and he was rude and dismissed me and implied that everything was in my head. I was disappointed because I had waited for this appointment for 6 months and I was dismissed in 3 months. Well the doctors sent his report in the mail, and it was the most unprofessional report I had received from any medical professional. He said the patient claims to have PoTs a diagnosis I have not recognised and Mast Cells Activation Disorder (what is this). This is not the first time I have met a medical practitioner that had no idea what to do with me, I have spent 12 hours in A&E and the doctors had no idea what PoTS or Fibromyalgia  but they showed empathy and did their research. Having gone through this time and time again, I have to in my own little way create awareness. I will be sharing relevant information and strategies  that are enabling me better understand my symptoms.  I do not completely understand dysautonomia so it will be a learning experience for me. ….

 

 

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One Response

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